For Christmas Eve dinner Nathan had Ham, potatoes, corn. He loved his ham, I have never seen him eat so much meat. I am thinking he likes salty foods because he also really loved the black olives.
Thursday, December 25, 2008
For Christmas Eve dinner Nathan had Ham, potatoes, corn. He loved his ham, I have never seen him eat so much meat. I am thinking he likes salty foods because he also really loved the black olives.
Sunday, December 21, 2008
Saturday, December 13, 2008
Friday, December 5, 2008
She had the results to Nathan's blood tests from last week and she had the results from his previous blood work to compare.
Peanuts/Nuts: She said that his peanut allergy went down so it is low. Peanut allergy is not the one I care about, avoiding peanuts isn't hard, I can find lots of foods that don't have peanuts. He doesn't need peanuts to survive.
She said his Almond went up, again who cares and he is not allergic to pecans at all but he is young and doesn't care about nuts so we just avoid them all!!
Milk: This went down and is the lowest of his allergies, good news and since it went down he has a better chance of possibly growing out of it.
Egg: MOST ALLERGIC TOO. Eggs went up for him and it is the highest allergen for him. Not good news since the chance of possibly growing out it is less. Great, how is going to go to school and eat birthday treats, every cake and cookie is made with eggs, no Sunday mornings of eating an egg breakfast or french toast. His life flashed before my eyes when she read this to me.
Wheat: Went down, but not too much. Wheat would be nice to get rid off because again every, noodle, cracker, cookie, bread, cake etc. is made with wheat flour.
I asked her when and which ones are low enough to food challenge? She said lately the food challenges she has done have been disappointing. The numbers are low but the reactions are still there. Like a False-Positive. She wants to take blood again in the Spring and decide from there. Also she would like to wait until he is a little older and can tell us if he has a reaction that we can't see such as tingling lips, etc. Makes sense.
Then on the weight questions again!! Maybe I will just feed him potato chips and candy everyday, he will have to gain and then maybe everyone will leave me alone!!
Tuesday, December 2, 2008
When we got home, we looked at him and decided he needed to get to urgent care to get checked out. We think he has the "nursemaid elbow" again (he had it in June). The Doctor said that she agreed and it is the same arm. She tried to "pop" it back into place and he cried, so hard. She thinks he heard a pop but he wasn't immediately better like last time. She thinks that it might take longer to recover because it took longer to get treated this time. We went to the waiting room and watched him play to see if he could use his right arm again and at first he didn't bust after a while he did. We went home.
I told daycare that if ever complains of his arm hurting to call me right away. He could just hurt it from swinging his arm too hard.
Monday, December 1, 2008
I don't wish any of Nathan's problems on anyone but I am glad to finally know where Nathan is getting he allergies and asthma from. Everytime the Doctors would ask us if it is in the family we would say "no" and they would give us strange looks. It just makes more sense now.
Thursday, November 27, 2008
At my parents house, he ate turkey and then we just set aside other foods (Corn & Green Beans) before they were buttered. He ate LOVED the Black Olives and I made a small batch of mashed potatoes with rice milk and his butter, but he didn't care for them. What child doesn't like mashed potatoes?
At Thanksgiving with my in-laws on Friday, we made him Turkey with hash browns, he loves hash browns. He also ate, some veggies & jell-o. He ate a ton that night.
Wednesday, November 26, 2008
We talked about his weight as we do at every single Doctor appointment (these Doctors make me feel like I don't feed my child because he doesn't gain much weight) and she asked more about his food allergies. Asked If we had seen a nutritionist, etc.
Then we asked about when we could test and find out if his allergies are getting worse or better. And she said we could go to the lab and give blood today. We did and they had such a hard time finding Nathan's veins as they always do, so they had to put heat packs on him and we had to wait longer. When they finally found his veins and took his blood, he cried...so hard. It made me cry.
So now we wait for the results.
Wednesday, November 19, 2008
The best part is Nathan LOVED them and ate 4 pancakes, the most he has eaten of anything in a while.
This same company also makes some other mixes. I haven't tried them yet.
Tuesday, November 18, 2008
Today was the first visit with our new Dr. and she was running late, which bothered me. I am not sure about her yet, it was our first appointment and she was really blind-sided since she doesn't have his records yet. She seemed a little disorganized and stand offish. The nurses seemed nicer to him then the actual Doctor.
Our visit was mainly for his Asthma because he has had night after night of coughing. No one in this house has slept the last 3 His meds are not working and he does have a cold. We went over his medication list and she decided to change his asthma meds and gave us a RX for reflex. I never filled the RX for reflex, I really don't think the coughing is from reflex and I don't want to over medicate my child. His coughing did stop without the reflex medication.
She wants see us next week for a check up on how he is doing.
I am determined to find a good allergist that I am comfortable with and that is compassionate and good to Nathan. He or She also HAS to be in our Network.
Sunday, November 16, 2008
But now with Nathan's allergies, I was worried about continuing the tradition. I found a website called Amanda's own confections. The price of a calendar is $9.50 not including shipping. I saw a regular calendar at the grocery store tonight for a $1.50. Seems like so much to pay. I bought a silver Advent box with doors and plan to fill it with my own treats and candies.
I just can't justify paying that much.
Sunday, November 9, 2008
Saturday, November 8, 2008
Monday, November 3, 2008
By Erin Richards of the Journal Sentinel
Posted: Nov. 2, 2008
One M&M, swallowed whole, and little Noelle's skin turned as red as a Cortland apple.
A month later, after eating soy ice cream, the 2-year-old turned colors again and started drooling, prompting her mother to inject a syringe full of epinephrine into the child's leg. Karen Tylicki of Mukwonago has no idea why her daughter's body treats certain foods as if they were poison. Tylicki, like parents of a growing number of food-allergic kids in Milwaukee and elsewhere around the country, is familiar with the fear, uncertainty, grief and sorrow that frequently accompany the condition.
Add hope to that list. Thanks to a La Crosse clinic that's gaining attention for its work desensitizing patients with food allergies, Noelle, now 6, can ingest almost 2 ounces of milk without a reaction.
The spike in the number of kids with food allergies - an 18% increase nationwide over the past decade, according to a newly released study from the U.S. Centers for Disease Control and Prevention - has prompted many schools and day-care facilities to develop new safety measures.
At the Children's Community Center, a day care facility in Menomonee Falls, director Nancy Larson said the jars of peanut butter that were once standard in every classroom have been removed because of the increase in peanut allergies.
"If someone forgot their lunch, we always used to give them peanut butter and crackers," Larson said. "Now we purchase soy butter."
In Waukesha Public Schools, District Nurse Twyla Lato said schools aren't "peanut-free" because that gives children a false sense of security. Nevertheless, the number of kids in the district with food allergies is startling: 545 students last year, compared with 481 in 2003-'04.
At Grafton Elementary School, Principal Jeff Martyka said that five years ago he didn't have any students "on epinephrine," the adrenaline-like drug that severely allergic children are supposed to carry with them at all times. Now he has seven.
Jamie Dempsey, 6, is one of them. Although he brings his lunch to school, his allergies to milk, eggs, peanuts and sesame are so severe that he eats on a sanitized lunch tray to avoid getting any of the offending substances on his skin. In the classroom, Dempsey and his classmates have hand sanitizers on their desks.
"It's hard - trying to strike a balance between providing awareness and not provoking anxiety in people or coming across as a high-maintenance mom," said Monica Dempsey, Jamie's mother.
Food, emotions linked Food and emotions are so intrinsically linked that dealing with the pitfalls of food allergies can seem like a disability at times, parents say.
Tara Williams, of the village of Belgium in Ozaukee County, said her family went through a period of mourning when her then 11-month-old son, Brett, was diagnosed with allergies to eggs, dairy, peanuts, tree nuts, sunflower and coconut.
"You start thinking of all the kid things you envisioned doing as they grew up - going out for pizza, ice cream on a hot summer night, even just having them leave your eyesight without worrying," Williams said. "You go through anger and sadness. Everything will be fine for a while, and then he'll have a reaction out of the blue, and you're all upset about it again."
Theories abound about why more children are suddenly allergic to more foods. Michael Zacharisen, a physician in the Allergy/Asthma/Immunology Clinic at Children's Hospital of Wisconsin in Wauwatosa, said none of them - the "we're too sanitized" theory, the "antibiotics leaching in the gut theory," for example - has been proved.
"Food allergy has lagged a bit behind other research because it doesn't have pharmaceutical funding," Zacharisen said.
Research on potential treatments is more promising. At Duke University, subjects in a study are being given tiny amounts of liquid or powder peanut protein to see if they can build up a tolerance over time.
Allergy Associates of La Crosse has also championed the practice. The clinic sees more than 10,000 patients a year who come for "sublingual immunotherapy" - or the placing of tiny drops of the allergen under the tongue to stimulate the oral mucosa. According to the clinic, 43 states are using the La Crosse method to treat patients with food and other allergies. Mary Morris, the clinic's lead allergist, said the goal is to minimize the effects of an accidental exposure.
Patient Noelle Tylicki, who started kindergarten this year in Genesee Depot, will increase her dosage of milk one last time in January. She has completed the desensitizing program for eggs.
"I have to give her wings at some point," her mother said. "She has to be able to fly by herself."
Tuesday, October 28, 2008
I guess this is another hard time - dealing with food allergies.
Saturday, October 25, 2008
Friday, October 24, 2008
Monday, October 20, 2008
Sunday, October 19, 2008
Friday, October 17, 2008
ALLERGY INFORMATION: MAY CONTAIN ALMONDS.
This made me angry. What about the Peanuts and milk which are both listed in the ingredient list. I can't believe Mars didn't list in bold in the allergy information. I think this is very misleading and if I didn't know better and just looked at the allergy information and gave it to my child, it could have been a deadly mistake. I am going to call or email Mars about this. Now I wonder how many other labels I just looked at the allergy information and not the ingredients. Sometimes the ingredients are strange and I don't know what they are so I rely on the allergy information to tell me what on the main 8 allergens the food contains.
Wednesday, October 15, 2008
Qutoed from the email:
Much the same as traditional Allergy SHOTs, Your Child’s Allergy DROPs contain FDA Approved pure Extracts of “Let Likes Cure Likes” Allergens i.e. Weed, Pet, Dust to which the Patient is actually Allergic To ! Slowly over a 80 Week Protocol, Allergy DROP Allergen Extract Concentrations are increased, allowing the Bodies Immune System to rely on its inherent recuperative abilities and ReCalibrate itself, thereby neutralizing Your Child’s Allergies at the Disease Source, No longer triggering Allergy Symptoms, eradicating Allergy
Complications and Producing Lasting, if Not LifeTime Benefits.
I wonder if this is something that could really work and isn't a scam. I have heard of this before but wonder why a Dr or allergist hasn't mentioned it to us.
Friday, October 10, 2008
Wednesday, October 8, 2008
Today, I take Nathan for the Flu shot and since he is two, the nurse said he could have the nasal vaccine, but then she asked if he has Asthma. Yes, he does, so he can't have the nasal vaccine. So he then had the shot done in the arm. Poor guy.
1/2 cup sugar
3 Tbsp. light corn syrup
2 Tbsp. margarine
1 cup vanilla-flavored soy or rice milk
Stir frequently approximately 10-15 minutes until it turns a caramel color.
Let mixture cool down slightly, then use as a sauce for whole apples or a dip for apple slices. Makes enough for about two apples.
Source: Kids with Food Allergies
I could also make baked apples with Cinnamon and other spices that would make a good fall treat that is safe.
Sunday, October 5, 2008
We also looked at a paramedic (which Nathan has already been in one when he was 9 months old) because he needed to be rushed to the hospital after an allergy attack. I don't want him to think paramedics or fire trucks are scary, I want him to understand they are nice people who help you.
Photo: Nathan and a fireman.
Date: October 5th, 2008
Subject: New Store Location
To Whom it may concern:
I am writing to request a Whole Foods Market in my area. My son has severe food allergies and we need to by most of his food at special health food stores. We love Whole Foods but the closet store is over 40 miles away. We are in the middle of the Milwaukee, WI store and the Madison, WI store. A store in Waukesha, WI would be great, this would be in the middle of your two current stores. Waukesha is a big county with approximately 380,985 residents and is the fastest growing county in WI. For more information on my county please visit:
My family and I deserve to have a store near us with healthy, natural and organic food.
Thank you for your time.
Auto Reply I received:
Thank you very much for your interest in Whole Foods Market and obvious support of our company. We appreciate your desire to have one of our stores located in your area. Your email will be forwarded to the Store Development Team for consideration.
For store opening information and store locations visit our website at http://www.wholefoodsmarket.com/. Click on Stores.
The Real Estate Team
Saturday, October 4, 2008
But, I have a plan.....the night after Trick-or-Treat, Nathan will put all his bad candy (the stuff he can't eat) into the pumpkin bucket. Then while he is sleeping the Great Pumpkin will come and take the bad stuff and replace it with good stuff. This can be safe candy, coloring books, halloween toys, etc.
It will be a special tradition we will start for him this year.
Wednesday, October 1, 2008
I am really looking forward to our next meeting, next month.
Monday, September 29, 2008
Photo: Aunt Nene holding Nathan when he was 4 months.
Sunday, September 28, 2008
Friday, September 26, 2008
The next day he is hungry and wants to eat. Usually when I was sick the best thing was Saltine crackers. Nathan can't have those, they have Wheat. It is a challenge to try to find foods that comfort a tummy but that are also safe and allergy free.
I did have some glueten free pretzels and gave him those, they are bland. At least he can have rice, potatos, bananas, applesauce, jello, guten free toast, chicken broth and chicken.
Just another thing to think about.
Sunday, September 21, 2008
Wednesday, September 17, 2008
I found this great article on Parents.com about lunch ideas and most of them Nathan can eat or I can subsitute a few items.
Wednesday, September 10, 2008
I took some pictures of my pantry, I actually have separate shelves for Nathan's food. This way it is easy for me or anyone else who is here watching him to to know where his "safe food" is.
Most foods I shop at the health food stores for (he eats a lot of natural and organic) and some foods I can get at the local grocery store.
The foods I keep stocked in the pantry are: Soy Milk, Rice Milk, Nana's cookies, De Boles Gluten Free Noodles, Gluten Free Bread, Dairy-Free Chocolate Chips, Gluten Free Pretzels and Pizza Breadsticks; Gluten Free Breakfast Bars, Canned Vegetables, Beans and Fruit Cups; Jell-o Cups, Egg Replacer, Rice, Gluten Free Cereals and more.
Thursday, September 4, 2008
Why is it so hard to find a cookbook that just has recipes that are allergy-free? I don't want to substitute to many ingredients, substituting milk or something like that is ok.
Maybe I need to write a cookbook, one that lists recipes for dinner meals that the whole family would like and that is normal, just doesn't call for dairy, eggs, wheat or peanuts.
Stuffed Peppers and Sloppy Joes are 2 meals that I can think of off the top of my head that you really don't have to substitute ingredients.
Tuesday, September 2, 2008
We stopped at this new burger place called Five Guys Burger and Fries. There were 2 signs on one of the doors - that I didn't see, because we went into the other door.
We ServeBulk Peanuts in Open Containers
We had planned to send Nathan to a new daycare and he was to start today. The new daycare had a Nurse and Chef. They would be able to prepare him meals and I wouldn't need to pack breakfast, lunches and snacks everyday. I was really excited about this new daycare but when I met the teachers, I wasn't pleased. I just didn't get a comfortable feeling.......so, I decided to keep him at the daycare he is at and pack his meals everyday. After I thought about it more it really seems like the best for Nathan - then I know what he is eating because I packed it.
Monday, September 1, 2008
They had an announcement that all their snacks and drinks are $.5o due to being the last day they are open. I told Steve to get in line and get something for Nathan. I told him Nathan could have a Slushie, Skittles, etc. - just something he isn't allergic too. Well, there was nothing left that Nathan could have. They had ice cream bars and chocolate - the 2 things Nathan couldn't have. I felt bad for Nathan when Steve came back empty handed. At least Nathan didn't quite understand and I am always prepared with "Safe Snacks".
This is just the beginning of the challenges we are going to face in the future.
Thursday, August 28, 2008
Cooked Playdough (baking soda and corn starch)
1 cup baking soda
1/2 cup corn starch
3/4 cup water
Have your child mix the baking soda and corn starch in a pot. Use hands to make sure all the lumps are broken up. Add water. The adult should put the pan on the stove over medium heat and stir constantly. As soon as the mixture gathers together, remove from the heat. When it cools, have your child knead it into a smooth playdough.
Note: Don't over cook this playdough or it will crumble when the children use it.
Alternative Recipe for childrens playdough
2 cup cornstarch
2 cup baking soda
1 1/4 cup cold water
Gradually add water until smooth. Heat, stirring constantly until mashed potato consistency. Turn onto plate, cover with damp cloth, let cool. Knead dough.
Then while I was at my grocery store in their Natural Food Section, I found the Allergaroo allergy-free kids spaghetti meals. Pre packaged and ready to serve for those busy nights after I get home work and don't have time to make dinner.
Sunday, August 17, 2008
Here is the link to Peter Can't Eat Peanuts on Amazon.
Thursday, August 14, 2008
He did pretty good throughout the day (according to daycare) and when we were at the park. But when we laid him down for bed he starting coughing again non stop. Some of the coughs are so bad that he gags, my poor baby. We did double up on his Asthma medications, but that is all we can do. So I will lay in bed, listen to his coughing and just cringe.
I don't know the trigger which bothers me, it was foggy and cooler today.....could it be the weather?
Sunday, August 10, 2008
Nutricia NA -Makers of the Neocate formula
Wildtree Foods - Food samples
First it started with Nathan's Epi-Pen, they didn't cover it. Now does this make sense? Don't you think an insurance company would cover a $150 medication rather than letting our son be hospitalized? I mean that is an easy brainer. If he needs his Epi-Pen and doesn't have one, he will be at the ER, has to cost more than the $150 Epi-Pen. Well, after a letter from our Pediatrician they decided to cover the Epi-Pen. Like we would just want one for no reason, they needed the Dr. to tell them it is medically necessary. DUH!!
Then Nathan was prescribed a special amino acid-based elemental formula (Elecare) that is very expensive about $200 a month. The allergist suggested we send the insurance company a letter to get it covered. We did and were denied.
It is sad that insurance companies don't cover these kinds of medical needs. I just joined a coalition to promote healthcare coverage and reimbursement of elemental formulas. They are called Children's Magic, http://www.childrensmagic.org/
Saturday, August 2, 2008
Tuesday, July 29, 2008
The poor guy was so afraid of any fly that came near him tonight. We were outside eating dinner and a fly came near him and he just freaked out. I hope he forgets about it and it passes otherwise he will be afraid to be outside.
Tuesday, July 22, 2008
The bracelet reads:
Front: Food Allergies
Back: Dairy, Eggs, Wheat and Nuts
My cell phone number
Monday, July 21, 2008
He is doing well otherwise; he could gain a few more pounds. Nathan weighs only 22lbs. and he is 33 inches tall. The pediatrician asked about his speech, development and nutrition. Nathan understands most commands and knows what you are saying to him. He seems to be on track. Lately he is speaking so many new words and even a few short sentences.
The words Nathan speaks are: Hi, Bye, Ball, Balloon, Bubbles, Truck, Stuck, All Done, Mama, More (with the sign) Please (he says peas) and "I got it" are a few.
Sunday, July 20, 2008
Nathan is TWO!! We made it a year with food allergies. When Nathan got up we gave him his birthday presents from us. He got:
Golf to Grow set
Thomas the Train trains
Leap Frog’s Refrigerator Alphabet Set
Shake N Go Race Car
Fisher Price First Glove and Ball set
Mr. Potato Head
I really wish we could get him a dog for his birthday, he loves dogs so much. Maybe we could look into a non-allergic dog someday.
After Nathan’s nap we took him to Wirth Pool in Brookfield. It was a beautiful day out and we all had a great time. Nathan had fun in the pool and the fun sandbox. We stayed a couple hours then headed home for dinner. I noticed one of Nathan’s eyes looking pink puffy and gooey – looked like pink-eye.
Saturday, July 19, 2008
The day didn’t start out the best; it was raining hard all morning.
Then I was off to the bakery to get one cake and the grocery store to get another cake and a few other items. I chopped onions, decorated the garage with Thomas the Train and red and blue decorations. He doesn’t really know Thomas the Train he just loves trains and since we live right by a track, he gets so excited when they pass.
At 4:00pm the guest started coming and the weathered cleared up; it turned out to be a perfect day, sunny and warm. Nathan had a great time, all our family came. Plus his little friend Maddux – they are the same age. They played together at the sand table, then took turns riding the Jeep and played ball together.
We cooked out Brats and Hotdogs, for sides we had: Baked Beans, Chips, Fruit Salad, Pasta Salad, 7 layer salad and a potato dish. Most of the food was allergy safe and Nathan could eat. I got him a cake from the gluten free bakery that he just loved, the frosting was really sweet. Even his friend Maddux who can have regular cake ate Nathan’s cake; I thought that was so sweet. As for the adults we ate an ice cream cake. I just feel guilty eating something that Nathan can’t have, he didn’t even notice.
Nathan got alot of great gifts. He got a BBQ bubble machine, Train table and Thomas the Train set, a Sit N Spin, Brewer T-shirt, Book, Bond and Money.
The party ended around 8:30pm, we cleaned up the garage and went inside.
Saturday, June 28, 2008
I feel so strongly about this issue and I don't want a child to miss the memories of going to a ball game with daddy because he or she is allegic to peanuts.
I really hope the Brewers will listen to the letters they recieve, other baseball teams in other cities have done this so it is not impossible.
Here is my letter to the Brewers:
Our son has peanut allergies and going to a Brewer game is something that is almost impossible to do. This something so simple for any other child, but for my child it is not possible. Some of a child’s fondest memories growing up are going to a baseball game. Please let all children have a chance to have those memories.
Most people don’t think of a food allergy being serve and think well if they just don’t eat then they are fine. That is not the case. I have to be so careful that my son doesn’t even touch something that has food residue on it. We do take many precautions to keep him safe and we are always washing and wiping his hands. Food allergies, including peanut can be deadly for some children and even though we carry his Epi-Pen with us all the time, we are not guaranteed he is going to be ok.
I hope you will consider having a peanut-free night or even having a designated peanut-free section for all games at Miller Park. This would let be a way of giving the less fortunate children a chance to see a Brewer Game and really help raise allergy awareness.
Steve and Jeanette
Now Nathan has been to one game, I don't know how serve Nathan's peanut allergies are. I wasn't able to relax and enjoy myself at the game. I don't know if he will go again unless there is a peanut free section or evening.
Wednesday, June 18, 2008
Friday, May 23, 2008
Sunday, May 18, 2008
I also found out about an allergy awareness walk in Madison in August that I can raise money for and we will go walk for a cause.
Monday, May 12, 2008
It is allergy awareness week. I really wanted to have some kind of fundraising at work to help raise awareness and get donations but work has cut back on the kinds of fun raising we can do.
I think maybe next year during allergy awareness week I will go to Nathan's daycare and read books to the children about allergies, they are books geared for young children in a story they can understand. Then I will hand out stickers about the stories we read. I will try to do this every year and even when he is in school I can come to his classroom. It is a great way to raise awareness with the young kids and his fellow classmates.
Sunday, May 11, 2008
Wednesday, April 23, 2008
Today we went to the Brewer game at Miller Park. It was a night game (we got free tickets) so we didn't stay for the whole game. Nathan seemed to have fun and liked all the excitement, he didn't like the fireworks though. He got a Brewer monkey stuffed animal and he loves it.
I brought some food for Nathan and planned on getting him chips and a hot dog at the game. When we were ordering I noticed they did have fries so I asked the lady at the counter what was in them and what kind of oil do they use (can't have peanut oil) and she said they were just potato's and the oil wasn't peanut. I trusted her and ordered some, we also got Nathan a hot dog to eat with his cucumbers I brought from home. He got the kids meal hot dog without a bun and it also came with potato chips.
So then DH (Dear Husband) says I am going to get a bag of peanuts. Are you kidding me??? Nathan is allergic to peanuts (we don't know how severe), I was hoping we weren't sitting next to someone that was eating them, we weren't. It is funny how when we were watching the game I watching at what people sitting near us were eating. I need to relax more and enjoy the game.
Friday, April 4, 2008
Please take a moment to donate through this secure site. http://www.firstgiving.com/nathanwittmann
Even if it is $5.00, every little bit adds up.
Thursday, April 3, 2008
Download country music sensation Trace Adkins’ live recording of the hit single “You’re Gonna Miss This” from iTunes between March 27 and April 10, 2008 to support the Food Allergy & Anaphylaxis Network.
Here is the link and more info
Thanks so much.
Friday, March 28, 2008
This is just another worry for a parent who has a child with a food allergy. Even someone who just kisses Nathan's cheek after having an ice cream can cause Nathan to have a reaction. We just have to be so careful.
Monday, March 24, 2008
I was really disapointed tonight that Trace didn't win the Apprentice because I really wanted his charity (FANN) to receive the donations. It was a good show and watching Traces' special about his daughter and her allergies hit so close to home that it made me cry.
Wednesday, March 12, 2008
I need to think of a way to prevent this from EVER happening again!! I was thinking of buying green dot stickers and applying them to every item of Nathan's lunch and telling daycare that if it has a green dot it is safe. I don't know, what am I going to do??
They have been so apologetic and feel horrible this happened. I can't really be mad at them, but it could have been life-threatening. Luckily, he was ok.
Tuesday, March 11, 2008
Sent: 3/10/2008 9:24:13 PM
Comments: We plan to visit your restaurant soon and our son has food allergies. He is allergic to Dairy, Egg, Wheat and Peanuts.Can you please send me a list of items that are free of these ingredients?
Hello Jeanette ~Thanks for writing to Potbelly. I'm excited to let you know that we have a revised nutritional analysis that answers all of your questions. You can find it on our website, www.potbelly.com, under the Nutrition Tab on Our Food page. There is also a downloadable pdf file on Allergens. I hope this helps.
Speaker of the House
Potbelly Sandwich Works
Monday, March 10, 2008
Not only is Nathan allergic to foods but is also allergic to dogs and cats. We used to have a cat until Nathan was 7 months old and the cat died. It was months later we found out about his allergy to the cat. Nathan had very bad eczema and we never knew why, I think the cat really made his eczema worse.
Here's the thing....I am an animal lover always have been, I always grew up with a cat or dog. It is killing me inside that we can't have a pet. I know the safety of my child comes first so that is why we never got another pet. I sometimes have the feeling that a woman gets when she wants a baby and can't. I wonder around the pet store looking at the animals for sale and I just want to cry.
Nathan seems to be an animal lover too, dogs mostly. He loves them! If one comes on TV he gets very excited and tries to touch the dog. When we are out for walks he runs up to our neighbors dogs and gets so happy and excited. How will I tell him someday that we can't have a dog because they make him sick.
EXAMPLES OF ALLERGY TO ANIMALS:
My sister has a dog and when Nathan was around the dog he did ok until the dog licked him. Then Nathan would break out in hives where the dog licked him.
We were at the Zoo last year and Nathan was by the goats that you could feed, we as soon as Nathan had goat saliva on his hand and arm, he broke out into hives. I had to give him Benadryl to stop the rection.
Another thing that makes it hard for us is going to peoples houses with pets. We have been invited to playgroups but could not attend because they have a pet. It is hard.
Wednesday, March 5, 2008
Nathan had his Oat challenge today and he passed, this is great news!! We were at the Allergist for a long 3 hours. Nathan ate Oatmeal for his challenge he seemed to really like it...Maple and Brown Sugar.
Now that he passed both Oat and Soy he is down to 4 food allergies instead of 2.
They said they won't test again now for another 6 months to 1 year. Too long, I just wonder if we challenged more, he could pass them.
Wednesday, February 20, 2008
We go back for the Oat challenge next in 2 weeks. His numbers for Oats is higher than the numbers for Soy, so there is a less chance of passing - but I am optamistic.
The Dr. listed to his lungs and said Nathan sounded good and is breathing good. His Asthma has gotten better since they did the 5-day steroid 2 weeks ago. He is still on Flovent and Zyrtec daily.
They weighed him and said he weighs 22lbs 2oz., but he was weighed with all his clothes on and his shoes, so I am sure his weight is really less. His height is 31 and 1/4 inches.
Thursday, February 7, 2008
Wednesday, February 6, 2008
We did have a woman come from Birth to 3 program to evaluate Nathan today, she should have some results for us next week. We are mostly concerened about his speech or lack of it.
Sunday, February 3, 2008
Food allergies just don't stop at the food that he eats but also food that he touches.
Friday, January 25, 2008
Each challenge is scheduled two weeks apart and I need to bring soy and oat food items to the appointment. They will test the food on his skin then his lips and if no reaction, then they let him eat it. We will be at each appointment for 3 hours.
Wednesday, January 23, 2008
Today at lunch, my plan was to give him a cucumber and as I started to cut it, I noticed it was rotten. This usually is not a big deal, but to me on this particular day it was. I seriously lost it and I broke out into tears. I didn't have a back-up plan - I didn't have another vegetable in the plan - what was I going to give him - I am the only one who cares about what he eats and if I didn't, who would. I am the solely responsible for his growth and nutrition. All the weight is on my shoulders and today it just got too heavy.
He just ended up eating his ham and bread with some fruit and no vegetable.
Monday, January 21, 2008
Weight: 20lbs. 13 1/2oz.
Length: 31 inches
His weight is so low he is off the chart and height is ok, he is growing, so that is good. His head is growing fine and he is in the normal range. Brain growth is good, he will be a smart boy.
Sunday, January 20, 2008
This week we had a follow-up on Nathan's allergy's. The nurse weighed Nathan and he weighs about 19lbs. They Dr. is concerned about his weight, he is 18 1/2 months old and only weighs 19lbs. I told her he had a bad cold recently and because of that he didn't eat as much as normal. He probably lost a little. The Allergist suggested we come back in a month for a follow-up, if he doesn't gain then she wanted to refer us to a GI specialist.
They also asked all the usual questions such as "Has he been exposed to any allergens?". He has, I accidentally gave him some corm pops cereal that had wheat and some fries that had soy and gluten. Who would think?? The good thing is that we didn't notice any kind of reaction. The reaction he would normally have from wheat and soy is breaking out in hives or a rash. We didn't see any skin reactions. That is great! The allergist decided to do a skin test but then after asking if Nathan has taken his Zyrtec lately, which he had, they decided a blood test would be the most accurate. So off to the lab we went and I watched again as they stuck needles into Nathan's arm to get vials of blood. It is so heart wrenching to watch, how can that much blood come out of a baby's arm.
They told us the results would be available in a week and we need to call. It is going to be a long week of waiting.
I just think "what if", what if he didn't have allergies or his allergies just magically went away one day. Like some kind of miracle.
I pray and hope.