Need to find allergy free donuts.

I get an email from Nathan's teacher requesting donuts for Nathan for their Christmas Party next week at school. The other children must be having donuts. Is she really going to give Nathan donuts if I send them in??

I have never found a donut that Nathan can eat, most Gluten Free ones have eggs. We need no eggs, no wheat, no diary and no nuts. I call our local GF bakery to see if they have donuts but they do not. So I call my best allergy friend. She has a boy with the same allergies as Nathan and the same age. She gave me an idea on how to make my own donuts. We will see if it works. Stay posted...

The teacher calls...

Tonight I get a phone call from the teacher in regards to the email I sent (see post below this).

She is immediately is defensive and turns it all around as she was trying not to be wasteful and gave Nathan choices on what to use for his food projects. If the other children don't have choices, then I don't want Nathan to have choices. She went on to say that she was using the chocolate frosting I sent in a month ago - to use it up - before she would open the new white frosting that I just sent. No! Use what I send when I send it. That is all I ask. Let Nathan have the same as the rest of children. She did apologize. We went over and over on this topic but I just wanted to cry and changed the subject.

I understand it is hard to be a teacher you have all those parents sometimes against you and you feel the need to be defensive, I like her as a teacher and just have one request. Use the food I send in.

Email to Nathan's teacher...

I sent an email to Nathan's teacher today because when they make food in class Nathan comes home with different stuff then what they are making and I send the items in for him to be like the other children. I just want Nathan to feel normal. Maybe it is time for a 504 Plan. Here is the email:

Dear Teacher,


Nathan came home from school today with the decorated cookies that he made in class but I noticed they had chocolate frosting.  I am not sure why as I sent a brand new container of white frosting for him to use, it was requested on your ingredient list.  


This also wasn't the first time this has happened.  For the turkey cupcakes he had decorated a chocolate cupcake and not the vanilla that I sent (and you requested on the sign up sheet). I appreciate the fact that you asked me for white bread for the reindeer sandwiches but at the same time Nathan said he had chocolate frosting and the recipe you sent home called for peanut butter. I would have been happy to have sent soy nut butter for Nathan so his could look the same.


When I see you requesting different foods for the "math cooking" projects I go and find those items so Nathan can feel like the other children, this may mean I am up after hours baking yellow cupcakes or driving miles to get a food that is comparable to your request.


I hope you understand how important this is to us. I am always willing to send foods as close as possible to what the other children are having as I want Nathan to feel as normal as possible.


Thanks.
Nathans mom

Results from Nathan's Surgey

Nathan was diagnosis is Eosinophilic Esophagitis or EE or EOE. A type of white blood cell (eosinophil) builds up in the tube that connects your mouth to your stomach (esophagus) as a reaction to foods, allergens or acid reflux. When that happens, the eosinophils can inflame or injure the esophageal tissue. Symptoms of EE in Children may vary from stomach ache, loss of appetite, throwing up and failure to thrive. Nathan has now been prescribed more medicines to help with this issue.


He also has some gastritis in the lining of his stomach in which he will need to take some medications for that. 


A new issue that recently has started with Nathan is horrible smelling gas and bowels to be hard and loose. The doctor has requested an x-ray of Nathan's abdomen. We are waiting for those results.

Nathan had surgery today.

Today Nathan had surgery at children's hospital. It was a two for one. The ENT doctor had requested to bring him in to remove a cyst in one of Nathan's ears. He had showed it to us on a camera at an appointment months ago. Nathan has had a few surgeries on his ears and has had tubes put in and taken out in the past. Then the Gastroenterologist doctor wanted to look at Nathan's esophagus because he coughs a lot when he eats and sometimes will throw up or have a foaming acid come up.

After the surgery the ENT doctor told us everything is good, there was no cysts in his ears and he is fine. He just cleaned them up. Nathan had no bleeding, didn't need any plain meds or anything. They didn't even go that far in. This puzzles me. If the Gastro Dr. didn't need to also look at Nathan we would have put him under for nothing. Where did this cysts go?

The Gastroenterologist told us she would have results in two weeks, so we will wait.

Happy Thanksgiving

Thanksgiving is a time to be Thankful for everyone and everything in your life. I am very Thankful for my wonderful family, friends and my beautiful home.

I am also thankful to all my wonderful blog readers and wish you all a very Happy and Safe Thanksgiving.

The Great Pumpkin

Nathan was really excited for the great pumpkin to come visit again this year. The Great Pumpkin will take all the unsafe Trick or Treat candy from Nathan's pumpkin while he is sleeping and leave him something else. This year the great pumpkin left Nathan five gold dollars. Nathan was so happy he didn't even miss his Trick or Treat candy.