Email to Nathan's teacher...

I sent an email to Nathan's teacher today because when they make food in class Nathan comes home with different stuff then what they are making and I send the items in for him to be like the other children. I just want Nathan to feel normal. Maybe it is time for a 504 Plan. Here is the email:

Dear Teacher,


Nathan came home from school today with the decorated cookies that he made in class but I noticed they had chocolate frosting.  I am not sure why as I sent a brand new container of white frosting for him to use, it was requested on your ingredient list.  


This also wasn't the first time this has happened.  For the turkey cupcakes he had decorated a chocolate cupcake and not the vanilla that I sent (and you requested on the sign up sheet). I appreciate the fact that you asked me for white bread for the reindeer sandwiches but at the same time Nathan said he had chocolate frosting and the recipe you sent home called for peanut butter. I would have been happy to have sent soy nut butter for Nathan so his could look the same.


When I see you requesting different foods for the "math cooking" projects I go and find those items so Nathan can feel like the other children, this may mean I am up after hours baking yellow cupcakes or driving miles to get a food that is comparable to your request.


I hope you understand how important this is to us. I am always willing to send foods as close as possible to what the other children are having as I want Nathan to feel as normal as possible.


Thanks.
Nathans mom

Results from Nathan's Surgey

Nathan was diagnosis is Eosinophilic Esophagitis or EE or EOE. A type of white blood cell (eosinophil) builds up in the tube that connects your mouth to your stomach (esophagus) as a reaction to foods, allergens or acid reflux. When that happens, the eosinophils can inflame or injure the esophageal tissue. Symptoms of EE in Children may vary from stomach ache, loss of appetite, throwing up and failure to thrive. Nathan has now been prescribed more medicines to help with this issue.


He also has some gastritis in the lining of his stomach in which he will need to take some medications for that. 


A new issue that recently has started with Nathan is horrible smelling gas and bowels to be hard and loose. The doctor has requested an x-ray of Nathan's abdomen. We are waiting for those results.

Nathan had surgery today.

Today Nathan had surgery at children's hospital. It was a two for one. The ENT doctor had requested to bring him in to remove a cyst in one of Nathan's ears. He had showed it to us on a camera at an appointment months ago. Nathan has had a few surgeries on his ears and has had tubes put in and taken out in the past. Then the Gastroenterologist doctor wanted to look at Nathan's esophagus because he coughs a lot when he eats and sometimes will throw up or have a foaming acid come up.

After the surgery the ENT doctor told us everything is good, there was no cysts in his ears and he is fine. He just cleaned them up. Nathan had no bleeding, didn't need any plain meds or anything. They didn't even go that far in. This puzzles me. If the Gastro Dr. didn't need to also look at Nathan we would have put him under for nothing. Where did this cysts go?

The Gastroenterologist told us she would have results in two weeks, so we will wait.

Happy Thanksgiving

Thanksgiving is a time to be Thankful for everyone and everything in your life. I am very Thankful for my wonderful family, friends and my beautiful home.

I am also thankful to all my wonderful blog readers and wish you all a very Happy and Safe Thanksgiving.

The Great Pumpkin

Nathan was really excited for the great pumpkin to come visit again this year. The Great Pumpkin will take all the unsafe Trick or Treat candy from Nathan's pumpkin while he is sleeping and leave him something else. This year the great pumpkin left Nathan five gold dollars. Nathan was so happy he didn't even miss his Trick or Treat candy.

Please Vote for this Blog

Circle of Moms website is going to be a picking the top 25 Food Allergy Mom blogs, I am hoping my readers can vote for me. You can vote once a day here (or go to the Vote for Me button on the right side of this page) until November 16th. Just scroll down until you find my blog and click vote.
Thanks so much!!

Made Spider Cookies at School.

An email was sent out looking for volunteers to help with a food project. I immediately signed up for two reasons.
(1) It was on a Wednesday (my day off)
(2) It involved food, all the ingredients Nathan is allergic too. The wonderful teacher told me ahead of time so I could find items that are close and safe for Nathan.

We made spider cookies made from Oreo cookies, chocolate frosting, MMs and licorice. For Nathan's spider, I used cookies that are just like Oreos but are dairy, egg, wheat and nut free, then I brought chocolate frosting, Skittles (instead of MMs) and a Gluten/Wheat free licorice. Nathan had fun and didn't feel left out, he even loved the taste. I was happy that I could be there when he made then to make sure that he used only his ingredients.